October’s book was the last of the year. But don’t worry because we will be back in February. Look here for updates on what the next book will be and the upcoming discussion date in February.
See you then!
End of life care and nursing care doesn’t happen in a vacuum. Yet rarely are the perspectives of nurses and caretakers put into the mainstream. So I would like to post a few stories from hospice nurses and other healthcare providers to get their perspective on an uncomfortable subject we all have to face.
Slate – Approaching Death
Hospice Diary – A Hospice Nurse’s Diary
Chicago Tribune – Striking Similarity of Dying Words
Pittsburgh Post-Gazette – Life’s Journey: A Better End / A hospice nurse’s frank approach to end of life
All Nurses – Hospice Nursing Message Board – Tell Me About Death
Casa de la Luz Hospice – Great Moments Can Be Small Moments – A Hospice Volunteer’s Story
Here are a few articles outlining the history of nursing homes in America, reflecting our culture and evolution on the subject of elder care and how we see how we take care of our older relatives. I won’t include the thousands and thousands of stories of nursing home and elder care abuse stories out there, mainly because they are so numerous and easily found. But I would like to focus this post on the history of nursing homes, the outlook for the nursing home industry, and the legal recourse for abuse victims.
George State University Law Review – From Almshouses to Nursing Homes and Community Care: Lessons from Medicaid’s History
National Center for Health Statistics: Nursing Home Care
National Center for Biotechnology Information: The Changing Structure of the Nursing Home Industry and the Impact of Ownership on Quality, Cost, and Access (published c.1986)
Franchise-Help.com: Senior Care Industry 2016 At a Glance
Bankrate.com: Americans racked by retirement fears
Agency for Healthcare Research and Quality: Improving Patient Safety in Nursing Homes:
A Resource List for Users of the AHRQ Nursing Home Survey on Patient Safety Culture
Elder Law Answers: What Nursing Home Staff Levels Are Required?
New York Times: The Right to Sue Restored
United States Senate Special Committee on Aging: Senate Unanimously Approves Collins, Blumenthal Resolution Recognizing World Elder Abuse Awareness Day
For those of you who might be dealing with this issue right now or know someone who is, I’d like to post a few links to help people who choose to take care of an elderly family member in the home.
The first is a 33-part series of YouTube videos from UCLA which help give practical training to a home caregiver to someone with Alzheimers and Dementia. I’m posting the first one here.
This series of videos is from Senior Helpers, an in-home care company. I’m not advocating on their behalf but they put out a great 4-part series for home caregivers dealing with Alzheimer’s and Dementia.
Since Roz brings up a lot of different difficult topics up in this book, I’ve decided to focus on a few topics to highlight resources and interesting articles. The first topic I want to touch on is Sundowning.
Mayo Clinic – Sundowning: Late-Day Confusion
Alzheimer’s Association – Sleep Issues and Sundowning
The Atlantic – An Overnight Nursing Home for Dementia Patients
New York Times – Behind the Scenes: Capturing Mental Twilight
Intentional Caregiver – My Experiences with “Sundowning”