Hospice Nurses

End of life care and nursing care doesn’t happen in a vacuum. Yet rarely are the perspectives of nurses and caretakers put into the mainstream. So I would like to post a few stories from hospice nurses and other healthcare providers to get their perspective on an uncomfortable subject we all have to face.

Slate – Approaching Death

NPR – A Nurse Reflects on the Privilege of Caring for Dying Patients

Hospice Diary – A Hospice Nurse’s Diary

Chicago Tribune – Striking Similarity of Dying Words

Pittsburgh Post-Gazette – Life’s Journey: A Better End / A hospice nurse’s frank approach to end of life

All Nurses – Hospice Nursing Message Board – Tell Me About Death

Casa de la Luz Hospice – Great Moments Can Be Small Moments – A Hospice Volunteer’s Story 

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Mystery Solved and an Epilogue

For those of you who have been wondering, yes Roz Chast did find her sister’s grave. With help from a fan and findagrave.com, she solved it. Here’s the epilogue, penned years later (also included in the article):

 

Caregiver Training

For those of you who might be dealing with this issue right now or know someone who is, I’d like to post a few links to help people who choose to take care of an elderly family member in the home.

The first is a 33-part series of YouTube videos from UCLA which help give practical training to a home caregiver to someone with Alzheimers and Dementia. I’m posting the first one here.

This series of videos is from Senior Helpers, an in-home care company. I’m not advocating on their behalf but they put out a great 4-part series for home caregivers dealing with Alzheimer’s and Dementia.

 

Sundowning

Since Roz brings up a lot of different difficult topics up in this book, I’ve decided to focus on a few topics to highlight resources and interesting articles. The first topic I want to touch on is Sundowning.

Mayo Clinic – Sundowning: Late-Day Confusion

Alzheimer’s Association – Sleep Issues and Sundowning 

CBC – Sundowners and Their Exhausted Caregivers

The Atlantic – An Overnight Nursing Home for Dementia Patients

New York Times – Behind the Scenes: Capturing Mental Twilight

Intentional Caregiver – My Experiences with “Sundowning”

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